Missouri Case Study 12 – Sparking Interest from Rural Missouri Hospitals on LGBT Health

andrew shaughnessyBy: Andrew Shaughnessy
Manager of Public Policy, PROMO Missouri
@AndrewShag

Upon concluding the review process for our Mid-Missouri and Southeast Missouri hospitals, health advocates were faced with the challenge of sparking interest among rural hospital officials on a review of their LGBT welcoming policies. Knowing the formula for sparking interest among urban hospitals, we knew that rural outreach would be considerably different. Putting on our strategy caps, advocates came up with a road map to engage these hospitals.

One issue that we felt needed to be overcome was the assumption that LGBT health is not an issue in rural Missouri – quite the contrary. We know that LGBT folks exist and live in every county in Missouri and across the Nation and we know that they utilize health and social service facilities – just like any citizen. But, disproportionately sexual minorities experience poorer health outcomes than our heterosexual peers according to the Missouri Foundation for Health.  Often times this is because of the invisibility LGBT rural folks feel within health and social service policies – it was our task to break our invisibility.

With this, advocates set out by utilizing the community, and the tools we learned from our outreach with urban hospitals. Through a series of strategic mailers that included a report of the hospitals LGBT welcoming policies as well as copies of local news articles that focused on LGBT health, advocates began to engage these officials.

In our outreach to rural hospital officials, advocates developed four points:

1. Create a sense of urgency – by highlighting local news articles that focus on LGBT health we were able to break our invisibility and create a sense of urgency. In developing these pieces, we also helped to start a community dialogue on LGBT health and the issues associated, including the lack of regional LGBT welcoming policies.

2. Highlight successes to create credibility– knowing this was the first time that these hospital officials would have likely been engaged by LGBT advocates, we wanted to create credibility from the begin by highlighting our past successes with urban hospitals.

3. Report along with methodology – to let officials know how we came to our conclusion on their LGBT welcoming policies, further establishing credibility.

4. Clear ask from the officials.

To review the packet of information sent to rural hospitals, please click here.

In the next case study, we will outline the work of the LGBT health advocates in outreaching to these officials along with lessons learned in moving forward with rural outreach on LGBT health.

LGBT HealthLink Conference Commentary: Not So Straight

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LGBT tobacco researchers at SRNT

by Jenna Wintemberg, MPH

What: Society for Research on Nicotine and Tobacco Conference

Where: Philadelphia, February 25 to 28, 2015

 

The Society for Research on Nicotine and Tobacco (SRNT) conference in Philadelphia is the one I look forward the most each year, where the leading researchers in tobacco control come together to share their research. Session topics range from basic and clinical science, to behavioral and social science, to marketing and policy. I was proud to be there representing the Out, Proud and Healthy in Missouri project and LGBT HealthLink. I was also happy to share that this year I attended the conference as a travel scholarship award recipient for increasing diversity in nicotine and tobacco research. Of the 10 travel award scholars, representing many tobacco health disparate populations, I was the only LGBTQ research scholar.

Some of the LGBTQ presentations (titles and lead authors) that took place:

  • Is There a Relationship Between the Concentration of Same-Sex Couples and Tobacco Retailer Density? (Joseph Lee)
  • Rates of Tobacco Use Among Young Adult LGB Subpopulations (Amanda Richardson)
  • Minority Stress, Smoking, and Cessation Attempts: Findings From a Community Sample of Transgender Women in the San Francisco Bay Area
  • Sexual and Gender Minority Community-Based Tobacco Cessation Program: Tailored Recruitment and Evidence-Based Intervention (Jenna Wintemberg)

I always start the SRNT conference by looking through the program booklet for all of the LGBTQ tobacco presentations, but this year someone beat me too it. Joseph Lee, a graduate student at University of North Carolina Chapel Hill, emailed all of the LGBTQ researchers on the first day of the conference suggesting that we have lunch together and attend each other’s sessions. We were told to look for the rainbow flag tablecloth at lunch today to find each other. We may have been only 15 out of 1,200+ researchers at the conference, but the quality of LGBTQ tobacco research being done is outstanding and we can network in a very individual and personal way. For example, during our lunch meeting we workshopped the projects we are working on such as developing cessation interventions for LGBTQ couples who both smoke, enhancing cultural competency at state quitlines and marketing these services to our communities and addressing cancer disparities. I left with great new connections, new research avenues, and a renewed passion to tackle tobacco in LGBTQ communities.

Jenna Wintemberg

Jenna Wintemberg, MPH is a Health Education and Promotion doctoral candidate at the University of Missouri and works as a Graduate Research Assistant on the Out, Proud and Healthy Project. Her research interests are Tobacco-Related Health Disparities in Minority Populations, Tobacco Cessation, and Policy Change.

 

 

Missouri Case Study 11 – Reviewing LGBT Welcoming Policies in Rural Missouri Hospitals

andrew shaughnessyBy: Andrew Shaughnessy
Manager of Public Policy, PROMO Missouri
@AndrewShag

At the beginning of February 2015, LGBT advocates in Missouri began reviewing our second list of hospitals on their LGBT welcoming policies. Having successfully accomplished several LGBT policy victories during our first round of outreach, we began to tackle a new beast — rural Missouri.

Choosing 10 hospitals throughout the Mid-Missouri and Southeast Missouri region, we began our review. Reviewing rural hospital policies as an outsider can be difficult. Our researchers, however, presented themselves as regular patients that really only had one connection publicly* with these hospitals — their website. Herein lies several challenges to this research. Difficulties in the regular maintenance of a hospital’s website, problems with the lack of hospital organizational structure to allow for maintenance, and the years of slowly decreasing revenue adding to the lack of structure; could lead to possible inaccuracies from the data collected during the reviewing process. We, however, have not experienced any hospitals who have challenged our review.

How did we begin to review a rural hospital’s website?

  1. Identify hospital’s main website – for most rural hospitals this could be the website that their System had set-up, make sure to check both. If the hospital’s website links to the System network, then make sure to check the System website for their LGBT welcoming policies.
  2. Use search engine to identify key terms used by LGBT patients – this includes searching for terms such as “discrimination”, “sexual orientation”, “gender identity”, “visitation”, “patient rights”.
  3. Document and log policy research – in order to create the individualized reports, while also maintaining for your records whether policies do or do not exist before beginning our outreach.

Upon reviewing each hospital website, we concluded our findings and began to work on outreaching to those hospitals in hopes of sparking their interest in reviewing their policies. Next Missouri case study, find out the strategy used in outreaching to rural hospitals to spark their interest in LGBT welcoming policies.

Behind Closed Drawers: a FUNdraising campaign for anal cancer

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When thinking about cancer, many people react with fear, confusion, sadness, and anger. Anal cancer can provoke all of these thoughts, along with additional feelings of embarrassment, uneasiness, and a sense of stigma. As a result, the conversation about anal cancer is hidden in a place where the sun doesn’t shine.

Now, it’s time to shed our anxieties (and our pants) to face anal cancer head on.

The National LGBT Cancer Network in partnership with Tusk and Dagger is launching a campaign to raise awareness about anal cancer and create a directory of free/low cost LGBT-friendly anal cancer screening facilities across the country. We invite you to show your support by donating at bit.ly/BehindClosedDrawers or texting “UNDIES” to 41444. We then ask you to help spread the word about uncovering the truth about anal cancer by posting a photo of your underwear on social media and tagging it with#BehindClosedDrawers. We hope to use these photos to add a touch of levity to a subject that is difficult to talk about.

Tackling anal cancer is a natural fit for The National LGBT Cancer Network: while the incidence is relatively rare in the general population (about 1 in 500) it is up to 34x more prevalent in men who have sex with men, and increasingly annually.

  • The majority of anal cancer cases are caused by the human papilloma virus (HPV)
  • HPV can be transmitted through both protected and unprotected anal intercourse and skin-to-skin contact, including manual stimulation
  • HIV-positive men with a history of anal intercourse are at the greatest risk for developing anal cancer; risk factors also include being a transplant recipient, a weakened immune system, smoking, and age

A growing number of physicians and health activists recommend that all men who have sex with men, especially those who are HIV+, be tested every 1-3 years depending on their immunological well-being and CD4 count. They suggest that HIV negative individuals be screened every 3 years.

This work is important, because most people know little about anal cancer, have never been screened for it, and don’t know that screening tests exist.

You can help us change that!

To donate, text “UNDIES” to 41444 or visit: bit.ly/BehindClosedDrawers

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Interested in helping out “Behind Closed Drawers”? Head here and then spread the word with a photo of your underwear and the hashtag #BehindClosedDrawers.

For Immediate Release- LGBT HealthLink Grades States on LGBT Tobacco Integration

PRESS RELEASE
December 10,  2014

For Immediate Release
Contact:
Dr. Scout
(954) 765-6024
scout@lgbtcenters.org

LGBT HealthLink Grades States on LGBT Tobacco Integration

Ft. Lauderdale, FL – December 10, 2014 – LGBT HealthLink today announced the first ever grades for state tobacco programs’ LGBT inclusion practices. The grades, based on a survey of best practices originally conducted in 2013 and updated this fall, represent an assessment of the overall progress each state has made in addressing inclusion, including policies, training, data collection, and community engagement. Grades span from “A” to “F”, with the average across states a “C+”.

LGBT people smoke at rates that are over 50% higher than the general population and experience profound health disparities in both cancer and smoking-related disease. The survey was developed to bring transparency to how successful states are at integrating this disproportionately affected population into their overall tobacco control work.

According to Daniella Matthews-Trigg, Administrator of LGBT HealthLink, “The results of this survey not only illustrate the work that needs to be done, but highlights the impressive efforts by many states. Our hope is that creating a system for comparison will motivate states to adopt as many best practices as possible, thereby improving acceptance and wellness in LGBTQ communities around the country”. LGBT HealthLink is offering resources to each state to improve their grades.

For several years, LGBT HealthLink (formerly the Network for LGBT Health Equity) has been circulating “Identifying and Eliminating LGBT Tobacco Disparities”, a document outlining the best practices for state programs in LGBT tobacco control, and working closely with states to implement them. These report cards are intended to gauge adoption of those best practices at a state level and create a baseline for future work.

The release of the report cards comes just after the CDC’s Office of Smoking and Health recently accepted applications from states for their next five years of tobacco funding. Dr. Scout, Director of LGBT HealthLink, noted that “In order to eliminate the LGBT smoking disparity, we need to make sure the tobacco control community targets us just like the tobacco industry already does.”

Matthews-Trigg emphasized how closely HealthLink is working with states improve their grades, “We are the people providing technical assistance to these states to do this well, so this is really a report card of our work as much as theirs. We look forward to continuing our work with the many amazing state representatives to get these grades even higher.”

View the report cards: www.lgbthealthlink.org/Report-Cards/2014

For more about the methodology and scoring:

www.lgbthealthlink.org/Report-Cards

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 LGBT HealthLink, a program of CenterLink, spreads LGBT wellness best practices across state and federal health departments and community organizations. LGBT HealthLink is one of eight CDC-funded tobacco and cancer disparity networks. www.lgbthealthlink.org

CenterLink: The Community of LGBT Centers was founded in 1994 as a member-based coalition to support the development of strong, sustainable LGBT community centers. Serving over 200 LGBT community centers across the country in 46 states. Puerto Rico and the District of Columbia, as well as centers in Canada, Mexico, China, Cameroon and Australia, the organization plays an important role in supporting the growth of LGBT centers and addressing the challenges they face by helping them to improve their organizational and service delivery capacity and increase access to public resources. www.lgbtcenters.org

Reframing the conversation around cervical cancer and HPV

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Daniella Matthews-Trigg
Program Administrator
LGBT HealthLink

 

 

In October, Michael Bare wrote the post Increasing LGBT HPV vaccines for our blog, and revealed the disturbing statistic that only about 31% of lesbians and bisexual women who were interviewed had completed the 3-shot course of the HPV vaccine, while about 14% had started but not completed the vaccine series. Michael wrote “This is particularly concerning considering lesbians and bisexual women are less likely to get regular PAP tests which can lead to early detection, meaning any cancer diagnosis may come at a later stage in the illness.” In November, the CDC has come out with a series of new infographics illustrating important information about cervical cancer and HPV awareness.

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Lesbians and cervical cancer

Compared to heterosexual women, lesbians may be at greater risk for HPV and cervical cancer due to health and lifestyle factors associated with poor overall health. Women who have sex with women can contract the virus from an infected partner in the same ways heterosexual women can, including through genital to genital contact, touching the genitals of a partner and then one’s own, or sharing sex toys without cleaning them properly first. Many lesbians have also experienced heterosexual intercourse, increasing their risk for HPV. However, lesbians are less likely to regularly visit a reproductive health specialist and are therefore less exposed to information about HPV or make use of the preventative steps developed for women. (Source: National LGBT Cancer Network)

Read more about HPV and cancer in LGBT communities HERE 

Reframing HPV

Much of the work now being done in the health arena around HPV is to reframe the discussion from instead of viewing HPV only as an STI, to instead address the instead address it as a cause of cervical cancer, and  to the lack of education, knowledge, and vaccination from that perspective.

(Read more about preventing cervical cancer on the CDC website HERE)

Additionally, the widespread misinformation about HPV transmission and lack of access to preventative care in LBT communities must be addressed.  Culturally competent clinicians, as well as community outreach campaigns, are two ways to increase testing and awareness in our communities.

PurpleFront

 

 

“It’s Your Time To Shine!” 2014 LGBTQ Youth Regional Retreats Recap

Motivational-Inspirational-Life-Quotes-2243National Youth Pride Services recently hosted it’s 2014 “It’s Your Time To Shine” Regional Retreat series in Detroit, Michigan (Midwest), Columbia, South Carolina (South) and Washington D.C. (East) thanks to sponsors CenterLink, Lambda Legal, 3LW TV, South Carolina Black Pride, Palmetto AIDS Life Support Services and Al Sura. The retreat was designed to uplift, inspire and motivate the black LGBTQ youth communities in a way that had never been done before. Below, the retreat facilitator and participants recap the events of the three retreats.

In 2014 NYPS changed it mission and vision to be MORE uplifting, positive and empowering; to focus on the positive and less of the negative. We believe that people who are self-confident are more willing to help lift others. After All, winners help others win. Many people are looking for hope, and may just not know where to find it or how to get there. “One Shinning Moment” is our nationwide effort to uplift and inspire our target population. There is much to be said about all the negativity in our communities. This video, shown to all attendees, highlights some of the negative opinions about our community, but we feel this is our #OneShinningMoment to come up with solutions and move to the next level.

The goals of the retreats were to make sure each participant would leave the weekend knowing how to:

Live your life on purpose.

Not on “default.” Be Proactive. Make conscious and deliberate choices. When you don’t choose, circumstances choose for you and you are never leading: you are following or catching up—or worse, living in “default” mode.

Utilize your full potential.

Give what you’re doing your best and fullest attention. Be here now. Even if you’re not where you want to be, giving it half of your effort doesn’t move you forward. Master what you have at hand, for the sake of mastering it, and something will shift.

Live in the question.

There is nothing you cannot be, do, or have, so do not impose limitations on yourself. Instead of saying you can’t get there, ask “How can I get there?” Live in the affirmation of possibility rather than the declaration of negativity.

There is always a way, and it is being presented consistently, but you have to live in the question to be on the lookout for the answer.

Learn to say “No.”

To live your best possible life, you need to learn how to say no to the things that aren’t serving you. The best barometer to measure this by is: if it isn’t a “hell yeah” (Yippee, so fun, can’t wait!), then it is most probably a no. If you have to talk yourself into it, it’s a no.

Once you get comfortable saying no, everything becomes a matter of choice. Living a life of choice is a living a life of freedom.

Know your own value.

Others may be more educated, skilled, or talented in one or another area, but there is something magnificent and valuable about what you have to offer this world that, in comparison, is equal.

Do not allow yourself or anyone else to diminish it. You have a learning disability? So did Dr.King, and that’s what makes him the most powerful speakers. Joe Vitale came from homelessness. Look at him now. Stop idolizing anyone else’s gifts and dismissing your own.

The Midwest version (June), the largest of the three, was held in conjunction with FIERCE, a national program working towards LGBTQ youth of color liberation and located at the Allied Media Conference at Wayne State University. Andrew Rahme, attended the Midwest Regional and based on his experiences and interactions during the weekend, actually became a member of NYPS. Here are some of his thoughts on the Detroit even which had a greater focus on community building and activism:

10383485_10203476696491931_6806017940715506034_nCreation, connection, and transformation are the words that come to mind when thinking about the Midwest Regional at the Allied Media Conference (AMC). Being a queer or trans person of color, it is reality that you have to constantly create solutions for yourself in order to live happily, and successfully. We create walls, stories, identities, spaces, and sometimes we even create realities different from the ones that we are confined to. At the AMC networking gathering, we had a chance to come together as QTPOC and identify the current issues to implement change in our community. Through games, laughter, relationship building, and amazing food, we discovered things about ourselves and about each other that allowed us to grow in ways we didn’t expect.

A very large focus of the network gathering at AMC was surrounded around connection. Connection to each other, to the world around us, and to our personal selves. We mapped out where our interests of change are and brainstormed what steps we can take to implement that change. We connected in ways we didn’t expect through common interests, experiences and the sharing of our wants, needs, hopes, and realities. Many of us began combining different realities and solutions in order to produce ideas for the most effective change.

The end result was inspiring and truly transforming. We got to be first hand witnesses of the beauty that comes out of organizing with QTPOC youth. Ideas as well as lasting relationships were created and strengthened, and to see what change these new alliances will create is exciting to watch for.

The South version (August) was held in Loft’s at The Claussen’s Inn. On Friday night all participants watched the video on the State of The Black LGBTQ Community. Some in the room agreed with some of the statements made, but the majority felt that there were some things that could be done to change the perception of what it is like to be black and LGBTQ.

On Saturday, the first session focused on a common theme in the video: “Status Anxiety”. This is the constant comparing of yourself to others. We looked at how the people you surround yourself with can be stressful and a few ways to get rid of status anxiety. Other issues touched on were: “Later Never Comes” (procrastination), Self Respect, Self Esteem, How Not To Care What Others Think About You as well as our other Life Development Series for Black LGBTQ young adults: “Dollars and Good Sense” and “Born To Win”.

Brandon Berry, of Orlando, FL gives his thoughts on the south retreat:

Brandon Dykes served as a facilitator for the South Region Retreat, as did Brandon Berry.

Brandon Dykes served as a facilitator for the South Region Retreat, as did Brandon Berry.

It was the epitome of comfort, which was a pleasant surprise to me. Imagine walking into a beautiful inn, rich with its area’s history and augmented tall ceiling including a large glass window clearly displaying the beautiful sky. Imagine a two-story loft for a room with all of the space necessary for yourself as well as any of your guests and fellow attendees. One would think no real productive work would be done. Contrary to that thought, we spent a majority of our days with each other having deep, lengthy and intelligent conversations. One of the highlights of this weekend is that great work took place in the comfort of our own rooms. It was a great experience.

I not only met strong and intelligent Black men of distinction, but I got to get personal with them and discuss life and goals and our journeys to our respective unfolding greatness. We held discussions on how to be an effective leader, things to remember when inheriting a leadership position from someone else, and other miscellaneous subjects like the Quality of Education from HBCUs vs PWIs.

Overall the conference was great, and the experience was even greater.

The East version (September) was held at the Akwaaba, a luxury, African inspired house in LGBTQ friendly DuPont Circle. Like the south version, on Friday night, participant’s gathered to watch the video and discuss it. They were more aggressive in their defense of the black LGBTQ community and pointed out how no one in the video took any personal responsibility.

The East Region participants, not only went over all of the same Life Development series topics covered in the South Region, they were able to

Jabbar Lewis facilitated the "Selfies" series in DC.

Jabbar Lewis facilitated the “Selfies” series in DC.

preview parts of our new series: “Choices”: Whether you believe it or not, everything up to this point in your life that has or has not happened to you is because of the choices you have made. Every aspect or our life when examined a little closer can be traced back to a series of choices we have made.

In addition, each participant was given a section of each series to study and then present to the group.

The East Region allowed participants to live together for 3 full days in a fully furnished house, similar to a reality show. This dynamic might have made the East Region one of the best experiences out of the three, so much so, we are looking to hosts future retreats in a luxury house setting. The South and East Regions are also where we tested out having each participant follow each presentation on their tablet/laptop or mobile devices instead of the traditional power points and projectors. They now will be able to relive each session on their mobile device at any time.

Here is a  complete list of all Life Development topics, related videos and handouts from the retreats.