Monthly Updates · Staff/Program Updates · Updates · webinar

Network training update- National Jewish Quitline!

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     Network Training Update
     National Jewish Quitline




Last week, Dr. Scout flew to Colorado to do trainings at the National Jewish Hospital, home of one of the country’s largest quitlines.

Dr. Scout’s training, titled  “The LGBT Population and Tobacco Use: Creating an LGBT Friendly & Inclusive Environment”, discussed smoking disparities in LGBT populations, how to improve cultural competence and inclusion, data collection, and strategies for targeting LGBT communities.

Screen Shot 2014-06-23 at 9.54.52 AM

LGBT Quitline Strategies:

  • Before they call
  • Understanding access barriers
  • Enhancing welcome at your organization
  • Once they call – creating welcoming environment
  • After they call – extra materials

Evidence of LGBT Avoidance of Quitlines:

“In a rare study in Colorado that looked at intentions of smokers to use quitlines, LGBT people who smoked and wanted to quit were 5x less likely than others to call a quit line.”

The Lessons:

  • While LGBT callers are very likely to experience stressors and triggers related to LGBT status…
  • they are very unlikely to presume the quitline is a welcoming environment to discuss these issues.
  • And hiding their LGBT status can adversely affect treatment.

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Presentations · Staff/Program Updates · Updates · webinar

Join Me For a Live Webcast: The Passion and Power of Young People in the Ongoing Fight Against Tobacco

Kenneth E. Warner | Lecture Series

The Passion and Power of Young People in the Ongoing Fight Against Tobacco


Wednesday July 24, 2013 from 12:30 PM to 2:00 PM EDT

Add to Calendar



In-person attendance is limited to those attending the CTFK Youth Advocacy Symposium and Legacy Youth Leadership Institute Training. No registration is necessary to view the live webcast.


On Wednesday, July 24th, Legacy and the Campaign for Tobacco Free Kids (CTFK) will host a special youth-led panel discussion, as part of the Kenneth E. Warner Series Lecture, which will highlight the power and passion of youth engagement in tobacco control.

Young leaders will discuss the challenges and successes of the movement and, with the upcoming release of the 50th Anniversary of the Surgeon General’s report, its significance in the future of tobacco control for years to come.

The live webcast will be archived for your convenience.

Moderator: Ritney Castine, Associate Director of Youth Advocacy, CTFK (Former Legacy Youth Board Liaison)


  • Chad Bullock, Founding Director of Forget Tobacco
  • Kaitlyn Reilly, Communications Consultant for Booz Allen Hamilton
  • Anna Santayana, Grassroots Marketing Coordinator for Legacy (Former crew marketer for the truth®tour)
  • Lee Storrow, Managing Director of the NC Alliance for Health and Member of the City Council for North Carolina Chapel Hill (Former Legacy Youth Board Liaison)

& Yours Truly…. 

  • Gustavo Torrez, Program Manager for the Network for LGBT Health Equity


For more information, please contact Laura Cruzada at or 202-341-0324.

Resources · Technical Assistance · webinar

Upcoming Webinar: The LGBTQ community and Cancer- Health Equality in the Era of the ACA

Francisco headshot
Francisco O. Buchting, Ph.D.
Buchting Consulting – Principal
Steering Committee Member

The LGBTQ community and Cancer- Health Equality in the Era of the ACA

Monday April 15, 2013 (11am Pacific) 2:00-3:30 PM EST

April is National Minority Health Month, and to celebrate,  join us April 15th as we discuss the importance of understanding the impact of Cancer in the LGBTQ community and the role of
the ACA in providing more equity in health.
We will try to significantly raise your awareness to the distinct challenges of eliminating
health disparities and promoting health equity among the LGBTQ community and the
effective efforts to improve the health of these diverse communities across the cancer



To register for this meeting:

1. Go to

2. Register for the meeting.

Once the host approves your request, you will receive a confirmation email with instructions for joining the meeting. To view in other time zones or languages, please click the link:

For assistance: 1. Go to 2. On the left navigation bar, click “Support”. You can contact:

To participate only in the audio portion:  Call-in toll-free number (Premiere): 1-888-757-2790 Call-in number (Premiere): 1-719-359-9722 Attendee access code: 329671

Cultural Competency Trainings · LGBT Policy · Resources · webinar

Missed the Trans Health webinar Last Week? It’s okay, we’ve got you covered.

The Network for LGBT health Equity
An insider’s view of informative info…
Reporting on HHS’s Transgender Health Webinar

In the interest of keeping you in the loop, we wanted to provide some updates and resources about something GROUNDBREAKING- Last week, the Department of Health and Human Services (HHS) hosted a first-of-it’s-kind webinar, called “A Healthy People 2020 Spotlight on LGBT Health: Transgender Health”!

Managed by HHS and launched in December 2010, Healthy people 2020 is a set of 10-year national objectives for improving the health of all Americans. One of the overarching goals of Healthy People 2020 is to “Achieve health equity, eliminate disparities, and improve the health of all groups”, andddddd Healthy People 2020 is way cooler than in past decades because it includes a section on LGBT Health!

Map of America

“During the past 2 decades, 1 of Healthy People’s overarching goals has focused on disparities. In Healthy People 2000, it was to reduce health disparities among Americans. In Healthy People 2010, it was to eliminate, not just reduce, health disparities. In Healthy People 2020, that goal was expanded even further: to achieve health equity, eliminate disparities, and improve the health of all groups.” (read more HERE)

As you can see above, this decade’s Healthy People is kind of our jam. And good news! If you missed the webinar (or if you would like to relive the experience), you can listen to a recording HERE! It comes highly recommended, not only because it was informative and relevant, but because it was also momentous and full of some seriously inspirational names in Transgender Health!

Tobacco Policy · webinar

Mobilizing Youth: Organizing Kick Butts Day 2012


Mobilizing Youth: Organizing Kick Butts Day 2012

Daniella Matthews-Trigg

Program Associate




Last night, Campaign for Tobacco-Free Kids hosted a National Youth Webinar to start planning for Kick Butts Day 2012.

Kick Butts Day, their national day of activism, is coming up in just over two months and the preparations are in full swing!

They started out the call by talking about all of the great resources that they have available to youth and adult supervisors to help organize a Kick Butts Day event!

Campaign for Tobacco-Free kids is offering mini-grants for $500 and $1000 to help sponsor and fund Kick Butts Day events. They are looking for events with clear educational or accountability message or targeted to decision-makers or policy-makers. To sign up and apply for a grant, click here!

They also have “events in a box”, which include everything needed for a Kick Butts Day event! There are different themes, including “They put WHAT in a cigarette?!”, which emphasizes the chemicals in tobacco, and “Under the Radar”, which teaches about advertising that targets teens and young adults. For more info on activities, click here!

There are tons more resources on their website, such as:

–          customizable, downloadable posters

–          downloadable stickers with instructions

–          Kick Butts Day Activity and Media Guides

The representative from Campaign for Tobacco-Free Kids also emphasized the importance of registering  Kick Butt Day Events on the site, so events can be documented, media can be planned, and goodies can be sent out.

And, the coolest part of the call was when youth representatives from SWAT (Students Working Against Tobacco)  in Florida spoke about their Kick Butt Day events from past years!

Some Examples of the events included:

– Tabling for Kick Butts Day at the County Fair, which was being held at the same time, and consequently reaching a larger number of people.

– Doing interviews on local radio stations

– Holding events that awareness about candy flavored tobacco products and their targeting of youth

– Hosting an art showcase and inviting community members, local policy makers and, because it was an election year,  political candidates.

All of the events were so creative! I was very impressed. And it got me thinking, with all of this outreach and involvement of youth around tobacco control, are LGBT youth getting involved too? A quick Google search of  “LGBT Youth Tobacco” got me tons of articles and information on the disparities in smoking between LGBT youth and  heterosexual youth, but not as many programs and organizations specifically targeting this. So we know this is a huge problem. Here is a crazy statistic from our website:

In a recent national study on adolescent health, 45% of females and 35% of males who reported same-sex attraction or behavior smoked; compared to only 29% for the rest of the youth.

In a study titled “Coming Out about Smoking: Tobacco Use in the LGBTQ Young Adult Community”, the National Youth Advocacy Coalition (NYAC) found that LGBT youth are likely to smoke due to “unique stressors such as discrimination and lack of family acceptance” and that many see smoking as an important social activity.  The report recommends that in order to reduce smoking rates, there should not only be outreach to youth smokers that focus on health risks, but also intervention programs designed by youth and for youth should be utilized. Hellooo! Campaign for Tobacco-Free kids is totally ahead of the curve.

So, attention all  LGBT youth organizations out there! How would you like to apply for a mini-grant and host an LGBT Kick Butts Day extravaganza that educates the community about the targeting not just of youth by the tobacco industry, but of LGBT youth?!  It would be amazing. And we at the Network would LOVE to help you out! So, take advantage of this amazing opportunity and all of these great resources and sign up with Kick Butts Day. And then let us know!!! Email us at or send us a message here!

Cultural Competency Trainings · webinar

Network to Team in Leading First LGBT Cultural Competency Trainings for Nat’l Health Service Corps

by Emilia Dunham

Program Associate

A while back the National LGBT Cancer Network and the Network for LGBT Health Equity were asked to do the first LGBT cultural competency webinar for the National Health Service Corps. Likely sparked by their amazing training for the Institute for Diversity in Health Management, this dynamic team returns to lead the first ever LGBT training for this organization.

We’re further excited that it’s happening this week! Thursday, October 6th Scout and Liz Margolies (the Cancer Network) will be doing two 90 minute webinars for them overall, with a training the following Thursday. To indicate the sheer reach of these webinars, the National Health Service Corps has 9,000 member providers (mostly doctors, dentists, & mental health providers), so we’re hoping a big chunk of them will sign up to do the webinars live, but they will also be available on their web for continued access. To further describe how important this training is, most members of NHSC are or were students, so they are early in their careers. Therefore, by educating them early, it make a bigger difference down the line. Also, at least half of NHSC members work in low-income health centers, which LGBT people more often fall into and low-income LGBT people have even more health disparities, so that’s something important about these trainings as well.

Given the size of this membership and the fact this is their first member-wide LGBT training, we’re thrilled to be leading the tremendous advances in LGBT trainings. Once again, we’re so grateful for Scout and Liz for the amazing work and leadership they have in educating providers and other health workers on LGBT knowledge.

Scout and Liz Margolies
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PopCtr Mtg: Panel Discussion on Probability and Non-Probability Methods

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA

SCIENCEBABBLE ALERT – This is a meeting for scientists, despite my efforts, some of this may get technical.

411 on the issue

Probability sampling = getting a group of people for your research that is statistically proven to be a random selection from the full population of interest, thus the statistics support you being able to draw conclusions for the full population based on the info from this random subgroup. (Like if 50% of your probability sample of LGBT people parachute, you can confidently say 50% of all LGBT people parachute.)

Non-probability sampling = any non-random sample of people. (Like if you do a survey at pride, it’s a non-probability sample.) Unfortunately, the statistics then do not support being able to generalize these findings to the full population, because there’s a chance bias might have snuck in. (Like, maybe pride participants aren’t as closeted as other LGBT people, so even if 50% of your sample are in LGBT parachuting clubs, you can’t say 50% of all LGBT people are in such clubs.)

Why’s this a big issue? Probability sample data is the gold-standard for drawing conclusions, but we have much less of this for LGBT people, mostly because LGBT measures aren’t included on the monster federal surveys that are the big probability studies.

Panel Members:

  • Dan Kasprzyk, Ph.D. Vice President of NORC (which I realize is so well known as one of 2 fanciest survey shops that his bio doesn’t even say what NORC stands for… so just know, NORC=surveys)
  • Melissa Clark, Ph.D. Brown University Department of Community Health
  • Margaret Rosario, Ph.D.
  • Jeffrey Parsons, PhD. Hunter University

The Panel

Dr. Kasprzyk led the panel off talking about some of his interesting experiences as part of the Institute of Medicine committee for the recent LGBT report. He emphasized that the choice of probability or non-probability might really not be as important as the reporting and impact of any well-designed study, regardless of the methods chosen. Then he moves onto talking about the federal surveys. “If the federal gov’t added LGBT measures to the American Community Survey, then allowed oversampling, that alone would allow the community to target populations, whether it’s regional, city, rural, you name it, and we’d be much better off. But we have to go beyond NHANES, you have to get on other surveys, NHIS and especially the Labor Force Survey would be very valuable.” He emphasized how important it was to get measures on these large full-probability surveys, “because otherwise you remain invisible.”

“Probability data is very important, it is the gold standard, in Washington, that’s what people are going to listen to. I think the real advancement in healthcare policy comes from really pushing hard with the federal government to have these questions on those surveys, and that point cannot be diminished. I think it’s really important that we actually stay focused on the federal government and become part of that health policy debate.” Dr. Kasprzyk

Dr. Clark followed (that’s Melissa to you and me) and led off by echoing all of Dr. Kasprzyk’s points. She says “”That’s usually how I end every talk I give about sexual minorities, I say ‘please help us get these questions added.'” She talked about her experience at Brown University and how much she’s been working to try to get the non-LGBT researchers to include LGBT measures. Through this effort, she’s managed to take one of the IOM report recommendations and institutionalize it, “Now when there’s a new study, people have to either include sexual minorities or explain why they are not.” Kudos to Melissa, let’s hope NIH follows suit!

Next up was Margaret Rosario. She warns us that while probability samples are important, most of our real explanatory data will come from non-probability samples because they are so much cheaper they have more latitude to go much deeper into issues, explore causal models, etc. For her, the bottom line is either approach can be useful, it’s often an issue of cost, if we have the chance to do the higher costs full-probability samples, excellent, if not, let’s just do excellent non-probability studies. Lastly she also weighs in on the importance of getting LGBT measures on the large surveys, “For the probability studies, please please, whatever we can do to get questions on there, do be able to identify the population as best we can, we should definitely do that.”

The panel was rounded out by Jeff Parsons. He talked about how it always seems there’s a flavor of the day at NIH for the newest rage for sampling, some of which are just never really viable in the field. “You can’t just count every 9th person who goes in the bar and pull them for the study, it doesn’t work.” Tonda Hughes from UIC echoes that sentiment, noting that the popular method, Respondent Driven Sampling, has never worked for her in samples of women.

As the discussion opens up to audience comments, there’s an interesting suggestion from Jim McNally, a director at ICPSR (the Intra-university Consortium of Political and Social Research, probably the largest data library in the country). one of the University of Michigan (ICPSR) scientists… “We recommend people work to create a small strong full probability sample and then ask the same questions you have on the federal surveys. That way you have policy strength to compare to the federal questions.”


Together We Can Build a Healthier Nation: America’s Plan for Health and Wellness

By Emilia Dunham

Program Associate, reporting on the HHS National Prevention Strategy Announcement  Webcast

You may know that as health and LGBT advocates we are particularly pleased with the National Prevention Strategy. It’s inclusive of LGBT people, has a tremendous focus on tobacco and wellness, and is a collaborative effort of 17 government departments. Coordinated strategies for prevention could be a real game changer for LGBT health in the future. We’re also proud for our part in asking for LGBT inclusion in the National Prevention Strategy, and this strategy will borrow from Healthy People 2020, which is also LGBT-inclusive that we also advocated for.

Thursday June 16, 2011 | 11:00 am ET

HHS Secretary Sebelius & U.S. Surgeon General Regina M. Benjamin join other administration officials to unveil the first ever National Prevention Strategy. The National Prevention Strategy, called for under the Affordable Care Act, outlines the ways that public and private partners can help Americans stay healthy and fit and improve our nation’s prosperity. Learn more about the release of the National Prevention Strategy and Read the Strategy.

Report out

The idea of this strategy is to prevent health issues, encourage wellness and improving access to care. Ultimately putting money into prevention will reduce cost on treatment, but this is really about saving lives more than anything.

HHS Secretary Sebelius discussed new strides the current administration has made with tobacco control. With removing words on cigarette packs (“light”, “mild”, “low”), promoting warning labels with graphic images, more limitations on tobacco ads, and with ACA free tobacco cessation is included. In fact the first listed priority of the Strategy is tobacco free-living.

States, public AND private sectors are committed to making changes to health and wellness, cooperating with this strategy with involvement with community organizations. For us this could mean widespread influence across all different fields of health to follow the inclusive measures of this health plan by paying attention to LGBT health.

Another major focus is on youth as it’s shown that many health problems, especially addiction and substance abuse can be avoided if a person avoids it before age 21.

Now the plan is kicking off!

This strategy will focus on Policies, Programs and Partnerships to make this change which is something most of us have known. Additionally wellness and prevention are integrated to effectively address our nation’s health in a way never before.

On the call, there was encouragement for special outreach to states and community. For some, the jargon and work of the government may not always reach them, which I think the LGBT community is very familiar with

Lastly, this plan will take significant effort and steps to address health disparities and understanding to reasons for these disparities in order to alleviate them. Still, HHS highlights there are challenges for addressing health disparities, so it’s important to keep up important work let’s hope the follow-through of this strategy will include us in the ways we need.

Action Alerts · APHA · Blogs en español · Break Free Alliance · CPPW · Creating Change · Creating Change 2010 · Creating Change 2011 · Creating Change 2011 · Cross-posting · Cultural Competency Trainings · IOM · Minnesota · National Coalition for LGBT Health · NatNet · Netroots Nation · Presentations · Puerto Rico · Quit Tips · Research Studies · Resources · social media · Steering Committee · Technical Assistance · Tobacco Policy · two_spirit_wellness · USSF · USSF_mlp · webinar

Center for Population Research in LGBT Health Holds Annual Convening

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA

My Non-Sampling Error Experience

Ok, I’ve fled from the very exciting Netroots Nation conference to get back to Boston because today and tomorrow mark the 3rd annual convening of one of The Fenway Institute’s other major initiatives, the Center for Population Research in LGBT Health. Not only does this mean I get to hang with some of my farflung friends for two days, not only does it mean the largest gathering of trans health researchers I’ve seen, not only does it mean I get to meet many upcoming researchers involved in the mentorship program, but right now, it’s also the biggest meeting about LGBT research that occurs each year.

I came a little late, so am jumping in as the head of one of the most prestigious survey centers in the country, Dan Kasprzyk of NORC, weighs in on issues related to LGBT sampling. (He was just talking about a non-sampling error experience.) So, I’m going to focus more on the actual content now… but just wanted to start off by giving you a little bit of context to the meeting, because this is a really cool project.

Abstract of Center for Population Research in LGBT Health Project

Previous studies have shown that sexual and gender minorities have higher prevalence of life-threatening physical and mental health conditions, experience significant barriers to health care quality and access, and face substantial threats to quality of life. Population-based research is necessary to more fully understand the causes of these disparities, so that effective responses can be developed. The proposed project’s long-term objective is to create a sustainable capacity for population studies and the translation of results into practice models for sexual and gender minorities. This 5-year effort will be conducted by the Fenway Institute, supported by the Research and Evaluation Department of Fenway Community Health (FCH), a Federally-Qualified Community Health Center. FCH provides comprehensive primary health care and mental health services annually to 11,000 neighborhood residents and students in nearby colleges and to LGBT persons, primarily from Greater Boston. Approximately 55% of patients self-identify as LGBT, reporting sexual or gender minority behavior and/or identity. The project has the following specific aims to develop the infrastructure for population research regarding the health of sexual minorities: (1) develop and support a multidisciplinary faculty to advance the study of sexual and gender minority populations, (2) create a shared research library, to include selected population-based datasets and findings from a large clinical dataset, and (3) disseminate the products of our work through the internet, a monograph, and peer-reviewed journal articles.  A team of researchers with diverse qualifications has been assembled to address these specific aims, with the assistance of a National Advisory Board of experienced population scientists and technical experts. The input and collaborative work of these researchers will lead to a common framework for multidisciplinary scholarship that advances understanding of sexual minority populations and how social, cultural, and institutional factors influence their health. This work will provide a foundation for culturally competent treatment approaches and behavior change models for sexual minorities.

social media · Tobacco Policy · two_spirit_wellness · USSF · USSF_mlp · webinar

What topics are missing from LGBT media?

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA
Reporting from Netroots National LGBT Pre-Conf, Minneapolis MN
Bending our brains to see how we can use blogs for social change.

First, thanks hugely to Mike Rodgers for creating this LGBT pre-conference where the bloggers and some LGBT groups are tossed in a room together to really try to hone our strategies to create social change (or health change for us) via all these new online tools. The first session was a rapid fire speakout session about what topics were missing from our LGBT media blogosphere. Needless to say, I was up like a jackrabbit to say fast that HEALTH was missing! We’re tired of begging LGBT folk to care about issues like tobacco use, informing folk that tobacco is actually the number one health issue that takes years off of our lives. There are so many opportunities to really change health at the national and local level right now, help make all these big new prevention initiatives really include our communities. I know the steps to take to help make LGBT health inclusive can be pretty complicated sometimes (like, if you know what the big ACASI debate is about NHIS right now, you may be a very tiny club)… but we can really break these issues down into bite-sized pieces. The room was pretty receptive and a few bloggers already want to interview us about this issue. So, here’s crossing our fingers and hoping this could be an interesting step in getting more health topics covered in the LGBT media.

As I listen in to the blogger-driven side of the conversation, it becomes clear that many of these blogs that so many of us use for our LGBT information, are completely volunteer driven. Gotta say kudos to the many people who literally have taken on 2nd jobs on top of their regular ones to build these huge online media efforts. It’s an underrecognized group of heros who really deserve our support. So, start building those relationships with media folk, media is certainly a proven component of norm change. And when you build those relationships, remember these folks who can really help us blow up our messages and create health changes… are often struggling to keep afloat. Don’t just think of what you want, think of what you can offer as well.