Conferences · Presentations · Pride · two_spirit_wellness

The Network’s very own Trudie Jackson is honored as Echo Magazine’s woman of the year!

New Network Logo Symbol 3-2011
Network Steering Committee Member Trudie Jackson:
Echo Magazine’s Woman of the Year! 
Congratulations Trudie!!!

v236449rWe were so happy to hear that our very own Steering Committee member, Trudie Jackson, has been chosen as Echo Magazine’s 2013 Woman of the Year for her work as an advocate for the trans community and for her many contributions to the wider LGBT community!

Trudie lives in Phoenix AZ, and works on a program dealing with health issues of urban Native Americans at Native Health, an agency that provides wellness services. Upon being hired i 2004, she helped to found an LGBT employee group, and from that point on has been unstoppable in her pursuit of making sure that Native American and Trans folks are represented in all health and equality conversations.

Among her many accomplishments, Trudie worked for two years as an outreach coordinator for LGBT Youth at the Southwest center for HIV/AIDS, was the recipient of the Phoenix Pride Scholarship Fund award three years in a row, worked as assistant director for a time of This Is HOW (an agency that provides services and housing to trans individuals), and was on the board for 1 Voice Community. And of course, she is one of The Network’s Steering Committee members! 

For the past three years Trudie has helped to organize the Southwest Rainbow Gathering, which she chaired in 2012 and Scout attended and spoke at!

2014 promises to be an awesome year for Trudie- she will be graduating from Arizona State University with a bachelor’s degree in public service and public policy, with a minor in American Indian studies and a certificate in LGBT studies,a nd she is thinking that politics may be on the horizon…

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Congratulations Trudie! You are Amazing! 

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Read the full article in Echo Magazine HERE!

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PopCtr Mtg: Panel Discussion on Probability and Non-Probability Methods

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA

SCIENCEBABBLE ALERT – This is a meeting for scientists, despite my efforts, some of this may get technical.

411 on the issue

Probability sampling = getting a group of people for your research that is statistically proven to be a random selection from the full population of interest, thus the statistics support you being able to draw conclusions for the full population based on the info from this random subgroup. (Like if 50% of your probability sample of LGBT people parachute, you can confidently say 50% of all LGBT people parachute.)

Non-probability sampling = any non-random sample of people. (Like if you do a survey at pride, it’s a non-probability sample.) Unfortunately, the statistics then do not support being able to generalize these findings to the full population, because there’s a chance bias might have snuck in. (Like, maybe pride participants aren’t as closeted as other LGBT people, so even if 50% of your sample are in LGBT parachuting clubs, you can’t say 50% of all LGBT people are in such clubs.)

Why’s this a big issue? Probability sample data is the gold-standard for drawing conclusions, but we have much less of this for LGBT people, mostly because LGBT measures aren’t included on the monster federal surveys that are the big probability studies.

Panel Members:

  • Dan Kasprzyk, Ph.D. Vice President of NORC (which I realize is so well known as one of 2 fanciest survey shops that his bio doesn’t even say what NORC stands for… so just know, NORC=surveys)
  • Melissa Clark, Ph.D. Brown University Department of Community Health
  • Margaret Rosario, Ph.D.
  • Jeffrey Parsons, PhD. Hunter University

The Panel

Dr. Kasprzyk led the panel off talking about some of his interesting experiences as part of the Institute of Medicine committee for the recent LGBT report. He emphasized that the choice of probability or non-probability might really not be as important as the reporting and impact of any well-designed study, regardless of the methods chosen. Then he moves onto talking about the federal surveys. “If the federal gov’t added LGBT measures to the American Community Survey, then allowed oversampling, that alone would allow the community to target populations, whether it’s regional, city, rural, you name it, and we’d be much better off. But we have to go beyond NHANES, you have to get on other surveys, NHIS and especially the Labor Force Survey would be very valuable.” He emphasized how important it was to get measures on these large full-probability surveys, “because otherwise you remain invisible.”

“Probability data is very important, it is the gold standard, in Washington, that’s what people are going to listen to. I think the real advancement in healthcare policy comes from really pushing hard with the federal government to have these questions on those surveys, and that point cannot be diminished. I think it’s really important that we actually stay focused on the federal government and become part of that health policy debate.” Dr. Kasprzyk

Dr. Clark followed (that’s Melissa to you and me) and led off by echoing all of Dr. Kasprzyk’s points. She says “”That’s usually how I end every talk I give about sexual minorities, I say ‘please help us get these questions added.'” She talked about her experience at Brown University and how much she’s been working to try to get the non-LGBT researchers to include LGBT measures. Through this effort, she’s managed to take one of the IOM report recommendations and institutionalize it, “Now when there’s a new study, people have to either include sexual minorities or explain why they are not.” Kudos to Melissa, let’s hope NIH follows suit!

Next up was Margaret Rosario. She warns us that while probability samples are important, most of our real explanatory data will come from non-probability samples because they are so much cheaper they have more latitude to go much deeper into issues, explore causal models, etc. For her, the bottom line is either approach can be useful, it’s often an issue of cost, if we have the chance to do the higher costs full-probability samples, excellent, if not, let’s just do excellent non-probability studies. Lastly she also weighs in on the importance of getting LGBT measures on the large surveys, “For the probability studies, please please, whatever we can do to get questions on there, do be able to identify the population as best we can, we should definitely do that.”

The panel was rounded out by Jeff Parsons. He talked about how it always seems there’s a flavor of the day at NIH for the newest rage for sampling, some of which are just never really viable in the field. “You can’t just count every 9th person who goes in the bar and pull them for the study, it doesn’t work.” Tonda Hughes from UIC echoes that sentiment, noting that the popular method, Respondent Driven Sampling, has never worked for her in samples of women.

As the discussion opens up to audience comments, there’s an interesting suggestion from Jim McNally, a director at ICPSR (the Intra-university Consortium of Political and Social Research, probably the largest data library in the country). one of the University of Michigan (ICPSR) scientists… “We recommend people work to create a small strong full probability sample and then ask the same questions you have on the federal surveys. That way you have policy strength to compare to the federal questions.”

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Center for Population Research in LGBT Health Holds Annual Convening

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA

My Non-Sampling Error Experience

Ok, I’ve fled from the very exciting Netroots Nation conference to get back to Boston because today and tomorrow mark the 3rd annual convening of one of The Fenway Institute’s other major initiatives, the Center for Population Research in LGBT Health. Not only does this mean I get to hang with some of my farflung friends for two days, not only does it mean the largest gathering of trans health researchers I’ve seen, not only does it mean I get to meet many upcoming researchers involved in the mentorship program, but right now, it’s also the biggest meeting about LGBT research that occurs each year.

I came a little late, so am jumping in as the head of one of the most prestigious survey centers in the country, Dan Kasprzyk of NORC, weighs in on issues related to LGBT sampling. (He was just talking about a non-sampling error experience.) So, I’m going to focus more on the actual content now… but just wanted to start off by giving you a little bit of context to the meeting, because this is a really cool project.

Abstract of Center for Population Research in LGBT Health Project

Previous studies have shown that sexual and gender minorities have higher prevalence of life-threatening physical and mental health conditions, experience significant barriers to health care quality and access, and face substantial threats to quality of life. Population-based research is necessary to more fully understand the causes of these disparities, so that effective responses can be developed. The proposed project’s long-term objective is to create a sustainable capacity for population studies and the translation of results into practice models for sexual and gender minorities. This 5-year effort will be conducted by the Fenway Institute, supported by the Research and Evaluation Department of Fenway Community Health (FCH), a Federally-Qualified Community Health Center. FCH provides comprehensive primary health care and mental health services annually to 11,000 neighborhood residents and students in nearby colleges and to LGBT persons, primarily from Greater Boston. Approximately 55% of patients self-identify as LGBT, reporting sexual or gender minority behavior and/or identity. The project has the following specific aims to develop the infrastructure for population research regarding the health of sexual minorities: (1) develop and support a multidisciplinary faculty to advance the study of sexual and gender minority populations, (2) create a shared research library, to include selected population-based datasets and findings from a large clinical dataset, and (3) disseminate the products of our work through the internet, a monograph, and peer-reviewed journal articles.  A team of researchers with diverse qualifications has been assembled to address these specific aims, with the assistance of a National Advisory Board of experienced population scientists and technical experts. The input and collaborative work of these researchers will lead to a common framework for multidisciplinary scholarship that advances understanding of sexual minority populations and how social, cultural, and institutional factors influence their health. This work will provide a foundation for culturally competent treatment approaches and behavior change models for sexual minorities.

social media · Tobacco Policy · two_spirit_wellness · USSF · USSF_mlp · webinar

What topics are missing from LGBT media?

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA
Reporting from Netroots National LGBT Pre-Conf, Minneapolis MN
Bending our brains to see how we can use blogs for social change.

First, thanks hugely to Mike Rodgers for creating this LGBT pre-conference where the bloggers and some LGBT groups are tossed in a room together to really try to hone our strategies to create social change (or health change for us) via all these new online tools. The first session was a rapid fire speakout session about what topics were missing from our LGBT media blogosphere. Needless to say, I was up like a jackrabbit to say fast that HEALTH was missing! We’re tired of begging LGBT folk to care about issues like tobacco use, informing folk that tobacco is actually the number one health issue that takes years off of our lives. There are so many opportunities to really change health at the national and local level right now, help make all these big new prevention initiatives really include our communities. I know the steps to take to help make LGBT health inclusive can be pretty complicated sometimes (like, if you know what the big ACASI debate is about NHIS right now, you may be a very tiny club)… but we can really break these issues down into bite-sized pieces. The room was pretty receptive and a few bloggers already want to interview us about this issue. So, here’s crossing our fingers and hoping this could be an interesting step in getting more health topics covered in the LGBT media.

As I listen in to the blogger-driven side of the conversation, it becomes clear that many of these blogs that so many of us use for our LGBT information, are completely volunteer driven. Gotta say kudos to the many people who literally have taken on 2nd jobs on top of their regular ones to build these huge online media efforts. It’s an underrecognized group of heros who really deserve our support. So, start building those relationships with media folk, media is certainly a proven component of norm change. And when you build those relationships, remember these folks who can really help us blow up our messages and create health changes… are often struggling to keep afloat. Don’t just think of what you want, think of what you can offer as well.

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Breaking News! NY Hospitals Announce Mandatory LGBT Cultural Competency Trainings

Scoutby Scout
Director, Network for LGBT Health Equity
A project of The Fenway Institute in Boston, MA
Reporting from Bellevue Hospital, NY

I’m down here in NYC and very, very happy to be at the press conference where New York City Health and Hospitals Corporation just announced mandatory LGBT cultural competency training for all their 37,000 employees! They also debuted the excellent new LGBT cultural competency video created by our friends at the The National LGBT Cancer Network. The Cancer Network created the full training to be administered to every NYC hospital employee, both the trainings and video are available for purchase or replication. (Don’t forget, the National LGBT Cancer Network is also our collaborator in our brand new LGBT Wellness NYC Marathon team.)

To have the head of all NY public hospitals reinforce that LGBT cultural competency trainings are a mandatory part of good healthcare is historic, let’s hope other cities and hospitals soon follow! See their press release here.

L to R: NYC Councilman Daniel Dromm; Liz Margolies, ED of National LGBT Cancer Network; NYC HHC President Alan D. Aviles, NYC Deputy Mayor Linda Gibbs, and HHC doctor.

Even HHS Secty Sebelius weighed in on what a big deal this is:

“I applaud the New York City Health and Hospitals Corporation for its leadership in ensuring LGBT patients are treated with the respect and dignity we all deserve. HHC has offered a path to a fairer America and HHS looks forward to seeing other efforts from care providers from around the country toward that same goal.”

We were also live-tweeting from the event with all play-by-play tweets on @lgbttobacco and @lgbthlthequity with some major help from friends on the ground @cathyrenna and @RennaComm, so check out updates there.

The video shown features the stories of several LGBT people who have experience bias in hospitals and in the healthcare system. You may have already seen an article about these trainings in Huffington Post, and an excerpt of the powerful video can be seen here:

Let’s hope the news spreads fast and other hospital systems follow suit.

See more press about this in:

  1. Advocate Magazine: NYC Hospitals Adopt LGBT Competence Training
  2. New Hospital Program Addresses LGBT Health Woe
  3. New York Times Blog: For Public Hospital Employees, New Training on Gay Patients
  4. NY1: New Program Attempts To Eliminate Barriers For LGBT Patients
  5. Rainbow Access Initiative: Breaking News! NY Hospitals Announce Mandatory LGBT Cultural Competency Trainings
  6. University of Arkansas for Medical Science: Center for Diversity Affairs to Sponsor LGBT Cultural Competency Strategies Webinar

SC Member Trudie Jackson Wins NAN Horizon Award 2011

by Emilia Dunham

Program Associate

Our Steering Committee Member Trudie Jackson of Native Health Tobacco Program was awarded the NAN Horizon Award 2011 by Navajo AIDS Network.

Trudie will be recognized on May 28th in Vanderwagen, NM. There the Navajo AIDS Network, Inc. (NAN) will be acknowledging her outstanding services with the Native Health Tobacco Program. Her service and dedication to HIV/AIDS prevention on the Navajo Nation is a reflection of the courage and unselfishness recognized in her work.

And Trudie truly has done some stunning amazing work. She’s a passionate, recognized advocate of many issues.

Trudie Jackson, Steering Committee member

The Network is extremely proud of her accomplishments which you may remember were also shared recently in cross-post feature of Trudie from the Phoenix Devil. We’re very excited for the work she will doing for the Network.

This honoring will occur during their annual NAN 2011 Native GLBT & Allies Summer Gathering, which is very appropriate. This gathering is when Navajo AIDS Network invites Native LGBTQ people to participate in a drug/alcohol free space to be refreshed physically, spiritually, mentally, and emotionally. Attendees can learn new efforts of HIV prevention and health issues relating to the Native LGBTQ community in addition to participating in outdoor activities and entertainment.

Trudie deserves this recognition, and along with NAN, we appreciate her devotion and leadership.

Presentations · two_spirit_wellness


The Two Spirit Wellness Gathering was very empowering.  I had the opportunity to be on the Health Disparities Panel and addressed Tobacco in the Native GLBT Community.  I share some of the new FDA rules that went into effect this past week = I am shared with the group about the elimination of Sponsorships for events that include Tribal Fairs.  I also shared the difference between Commerical and Traditional Tobacco.    I was asked a question by one of the audience members about more in depth clarification about Traditional Tobacco.  There were other panels about Identity and included various speakers.  The Gathering included Native Hawaiians, Alaska Native and Native Americansd.  It was great to see different Tribal representation and which included Canadian Tribes.  This was a great opportunity to network and make new connections.  The organizers made this event very successful by bringing a variety of speakers.  There were Transgender representation, as well as speakers.  I had the opportunity to hear a story from a Native American Transman and found it enlighting.  It is very rare that I come across a Native American Transman.  To top my day, I won a pair of long beaded red earrings, which I plan to wear at the Pride Parade on Sunday.  This was the 3rd Annual Two Spirit Wellness Gathering – Four Decades of Living Red and Resilient.  I was honored to be among great Native American GLBT Two Spirit people from the Bay Area.


Gay American Indians Welcome Reception

The GAI organized a Welcome Reception for the Two Spirit Wellness Gathering and San Fran Pride.  It was great to be among other Native Americans that reside in the Bay Area.  The Host Committee offered a dinner, with the famous Commodity Cheese (common among Native Americans that reside on the reservation).  Randy Burns helped organized the event and the theme was 35th Anniversary 1975-2010 “Living Legacy.”  The GAI is one of the oldest Native GLBT Two Spirit  organizations.  The agenda included advocates from the Bay Area that work in the HIV field.  Another interesting speakers were:  a judge, a poet and some fun filled entertainment such as belly dancers and a Native American Drag Show.  It was good to mingle with attendees and make new friends, plus rekindle old friendships.  I was very impressed with the program, since some of the photos were taken from the 1070’s to current.  It is great to see how the Native American GLBT community has come, since the 1070’s.  There were some great Native American singing and dancing.  Everyone was geared up for the Two Spirit Wellness Gathering and individuals traveling for San Fran Pride were also happy to represent the Native American GLBT Community.  I was very impressed with how my experience was going so far.  I stepped out with colleagues from New Mexico and Los Angeles to walk the Castro District.  I was glad I brought my walking shoes, since it will put on some major miles.  Lovely weather compared to 109 degree heat.  Excited to share about Tobacco and some of the new laws that went into effect.  Stay tuned….


Two Spirit Wellness Conference in San Fran.

Trudie Jackson

Looking forward to traveling to San Francisco on 06/24/10 for the Two Spirit Wellness Conference to speak on LGBT and Tobacco, and HIV/AIDS.  I was invited by Randy Burns and the Conference Committee to speak.   I received a call the other morning from Randy to give me an overview of the lineup that is in store for me such as:  Two Spirit Wellness Conference, Trans March, BBQ, and attend the San Francisco Pride.  This will be my 1st time attending Pride, in the national GLBT capital.   I never thought I would actually witness the San Fran Pride Parade with my own eyes.  As a Native American Transgender person wonderful things happening in my life = a young Native GLBT individual residing on the reservation would die to participate in.  This trip is for ALL the young Native GLBT individuals living on the reservation = sharing my experience and posting on my blog.  Please stay tuned to some exciting things in store from San Francisco.

Click here for more info:

In spirit,