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Successful Response on Creating Change 2011 Action Alert!

Staff in Puerto Rico: Gustavo, Emilia & Scout
Network Staff

by Network Staff

Gustavo, Emilia and Scout


We have some exciting news to share!

You may remember our action alert at/after Creating Change 2011, petitioning the CDC to include LGBT people/questions in data collection. We receiving almost 500 signatures through in-person and online petition, and we are happy to share the letter we received from CDC Director Thomas Frieden. The CDC acknowledged the gaps in research and funding, as well as clarified their committment to prioritizing LGBT data collection and funding. The letter outlined a number of projects the CDC is working on to include more research and data collection of LGBT people:

  1. The recent release of a National Health Statistics Report by the National Center for Health Statistics, which includes data on sexual identity and behavior from the National Survey of Family Growth. This report is available online at
  2. A collaborative effort between the Centers for Disease Control and Prevention (CDC) and other agencies throughout HHS to develop and test questions on sexual orientation and gender identity in order to improve both the quality and quantity of such data.
  3. A Surveillance Summary under development at CDC for publication in the Morbidity and Mortality Weekly Report on sexual identity and behavior among high school students using data from the Youth Risk Behavior Surveillance System (YRBSS) in selected jurisdictions from 2001-2009.
  4. A review of the existing LGBT data by the Office of the Assistant Secretary for Health, which will result in the generation of baselines and targets addressing LGBT health disparities through the Healthy People 2020 initiative. This process will include meetings with the LGBT data experts and stakeholders to provide transparency and opportunities for input.

To read the entire document, read the copy below or click on the link for the PDF: Frieden Letter to Network

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