Announcing Our New Name – LGBT HealthLink: The Network for Health Equity

Headshot Scout
Director of CenterLink’s Network for LGBT Health Equity
If you’ve ever stumbled over our name, you are not alone. We originally designed the name of the Network for LGBT Health Equity to be crystal clear about who were were as we built awareness among state departments of health but as we all heard, it was long and people stumbled over it often.

A year ago, we moved our organization to CenterLink, the community of LGBT Centers. We are really enjoying being so integrated with community centers across the land and want to tell everyone where we live.

It’s time, we now need a new name that reflects our home and how we’re not the new kids on the block any more.

So please welcome me in introducing our new name…

LGBT HealthLink

The Network for Health Equity

If you liked us before, you will love us now. It will also be easier to remember our new name and our new home.

Stay tuned as we really start to do more brand building on this name over the next year. We want to be as well known among LGBT leadership as we are to state departments of health. If you’ve got any good ideas for that, we’re all ears!

Top Goals of the Tobacco & Cancer Disparity Networks for Coming Year

Headshot Scout
Director of CenterLink’s Network for LGBT Health Equity
Yes, I’m still at the same meeting (I know it’s only 60 seconds later)… and our next question was what were our top goals for the coming year? So, let’s jump right in.

Top Goals for Next Year

National Council for Behavioral Health / mental health

  • Continue to hold state strategy sessions to see what’s been done and where there are opportunities to move the needle.
  • Examine their current (extensive) workforce development programs to see how tobacco & cancer information can be bolstered
  • Looking to leverage more opportunities to collaborate and coordinate with the sister networks as a body

Inter-Tribal Council of Michigan / American Indian

  • Looking to promote lung cancer screening, awareness and availability. (there’s low awareness on this now)
  • Creating information repositories on their website, of toolkits, links to outside information, etc.
  • Promoting tobacco screening for youth in tribal clinics through onsite trainings
  • Promoting community and clinical linkages among the tribal health clinics

RAISE / Asian American/Pacific Islander

  • Disseminating cancer and tobacco equity information to the different partners
  • Providing technical assistance to the different partners
  • Coming big 20th anniversary conference in SF

Patient Advocacy Foundation / low socioeconomic status

  • Build the network!
  • Launch a website
  • Leaning into media and social media to get information out to the people who really need to understand resources

CADCA / geographic health equity

  • Engage the network partners in meaningful ways, especially the sister disparity networks
  • Amplify the message by building a following for the network on social media
  • Building breadth & depth, especially starting conversations about how we define ourselves as a community. Maybe an Instagram campaign of selfies?
  • Building capacity & coalition, looking at readiness of different states to change policies.
  • Being a repository for information

LGBT Network (<– guess who)

  • Enduring the fallout after we give a bunch of states F’s on their LGBT inclusion report cards/rebuilding relationships with some states/providing more technical assistance to states to help them up their game
  • Launching, with the National LGBT Cancer Network, the first ever National LGBT Cancer Action Plan
  • Launching, with the National LGBT Cancer Network, the first LGBT Cancer Best Practices compilation
  • Creating model wellness policies for LGBT community centers, working with centers to see who can adopt these policies

NAATPN / African American/African

  • Intercultural Cancer Council created a guide about how to work with specific populations related to health disparities, looking to expand and finish it in year 2.
  • Looking for other cities that might adopt the Chicago model to ban flavored cigarette sales near schools
  • Work with the SouthEast Intercultural Cancer Council region to drill down into a system or policy change which can be implemented to affect cancer disparities.
  • The faith based summit in year one has really taken off, looking to expand it in year two.

National Alliance for Hispanic Health

  • Continuing to build the infrastructure of the network
  • Look at secondhand smoke and see how it affects different populations, especially in the southeast
  • Promote skin/cervical/colorectal cancer awareness and screening to coincide with and support CDC’s emphasis on same

Top Accomplishments of Tobacco & Cancer Disparity Networks This Year

Headshot Scout
Director of CenterLink’s Network for LGBT Health Equity
Hey y’all — Daniella and Liz (National LGBT Cancer Network) and I are all down in Atlanta this week for the gathering of all the 50 state cancer program staff. But first, we get a few days to meet with our sister disparity networks. We’re about to come up on our first year anniversary of having this new expanded funding for cancer too. So as part of our introductions, we’re going over our biggest accomplishments of the past year. Thought I’d take notes as best I could to help you see what the different disparity networks have been up to.
If the focus of their network isn’t clear by their name, I’ve put their official focus right after the name.
National Council for Behavioral Health / mental health equity
  • Launch their newsletter
  • Have a series of webinars, including one with tobacco leadership + one on LGBT outreach
  • Convening 9 states for a leadership summit on tobacco and cancer

Inter-Tribal Council of Michigan / American Indian

  • Building infrastructure
  • Continuing/expanding their webinar series
  • Identifying areas they want to grow in the future

RAISE / Asian American/Pacific Islander

  • Developed their own website http://www.appealforhealth.org/RAISE
  • Launched a blog to highlight their work
  • Moving into social media, watch for #RAISEwellness hashtag
  • Web portal with culturally specific cancer materials (through partnership)

Patient Advocacy Foundation / low socioeconomic health equity

  • They just got the award a few weeks ago, so their biggest accomplishment is getting the award

Community Anti-Drug Coalitions of America (CADCA) / geographic health equity

  • Just funded this year so many of their accomplishments are in building their network
  • Doing a lot of theory work, creating a model of change for the work
  • Listening sessions from community leadership
  • Build new website, new brand
  • Held in person symposium gathering needs input
  • Forthcoming supplement in 300 newspapers around the country on geographic disparities)

LGBT Network (<– us!)

  • launched/curated Wellness page on Huffington Post Gay Voices + weekly top LGBT Wellness news series
  • held first National LGBT Cancer Summit
  • launched tobacco infographic in conjunction with 50th anniversary Surgeon General’s report (#SGR50), got 14 news stories off that release
  • surveyed all community centers for baseline info on existing wellness policies & practices
  • launched template wellness needs assessment, currently being used by AR, MI, and forthcoming for WI, VT.
  • surveyed community centers to establish baseline of wellness activities/policies
  • Coming in days, new website!

National African American Tobacco Prevention Network

  • Worked with Chicago to help the City move to restricting selling flavored tobacco (menthol) near public schools.
  • Worked with Intercultural Cancer Council to create a weeklong workshop on health disparities
  • Hosting a faith based summit to educate leadership on tobacco & cancer disparity issues.

National Alliance for Hispanic Health

  • Establishment of national advisory committee
  • Development of network website (launch in 10 days)
  • Worked with their national partners to conduct an environmental scan in 10 different states

Saving 1 Million Lives for Pride: Surgeon General Releases LGBT Smoking Video

Surgeon General VideoPRESS RELEASE
June 27, 2014
For Immediate Release
Contact:
Dr. Scout
(954) 376-2701
CenterLink

 

Saving 1 Million Lives for Pride

 

Surgeon General Releases Video About 

LGBT Smoking Disparities

 

Ft. Lauderdale, FL – In honor of LGBT Pride Month, the Office of the Surgeon General and CDC’s Office of Smoking and Health have launched a video about smoking disparities in LGBT communities. Featuring Dr. Scout from CenterLink’s Network for LGBT Health Equity, “Smoking Within the LGBT Community” examines tobacco industry targeting and the importance of LGBT inclusion in the tobacco control movement.

The video, which also promotes the 50th anniversary of the first Surgeon General’s Report on smoking, speaks to the results from the 2012-2013 National Adult Tobacco Survey also released this week in CDC’s Morbidity & Mortality Weekly Report (MMWR). The new national surveillance data found the prevalence of smoking among LGBT people is 30.8%, in comparison to 20.5% among non-LGBT people. According to CDC approximately 2.3 million LGBT people in the U.S. are current smokers.

In a press release issued this week, the CDC announced that the Tips From Former Smokers Campaign, which will be launching it’s next phase of ads in July, will feature an HIV+ spokesperson named Brian, who suffered a stroke as a result of complications from his HIV as a result of smoking. You can see Brian’s tips video HERE.

“We know that approximately one million LGBT people will die early from tobacco-related causes — we want to save those lives instead,” said Dr. Scout. “The first step is spreading the news that LGBT people smoke at such high rates. We’re very pleased to see the Surgeon General’s Office and CDC recognizing LGBT pride month by releasing all these resources to help us raise awareness.”

The new Tips ad, the MMWR findings, and the CDC’s video all speak to a vitally important conversation that everyone should be having this pride month: Smoking is the LGBT community’s biggest health burden, and the millions of LGBT deaths from tobacco are 100


 # # #

About CenterLink: The Community of LGBT Centers

CenterLink was founded in 1994 as a member-based coalition to support the development of strong, sustainable LGBT community centers. Serving over 200 LGBT community centers across the country in 46 states. Puerto Rico and the District of Columbia, as well as centers in Canada, Mexico, China, Cameroon and Australia, the organization plays an important role in supporting the growth of LGBT centers and addressing the challenges they face, by helping them to improve their organizational and service delivery capacity and increase access to public resources. (www.lgbtcenters.org)

 

About CenterLink’s Network for LGBT Health Equity

The Network for LGBT Health Equity is a community-driven network of advocates and professionals looking to enhance LGBT health by eliminating tobacco use, and reducing cancer risk through enhancing diet and exercise. The Network, one of eight CDC-funded tobacco and cancer disparity networks, directly trains state health departments and other policymakers in LGBT cultural competency and forges bridges between those agencies and local LGBT health specialists. The Network also actively monitors national and state health policymakers and urges community action when there is an opportunity to enhance LGBT wellness. (www.lgbthealthequity.org)

Passing the Skinny, Young, Good-Looking Guys

bike_image

As published on Huffington Post’s new LGBT Wellness blog, see original at:

http://www.huffingtonpost.com/scout-phd/passing-the-skinny-young-_b_5398022.html?utm_hp_ref=lgbt-wellness

As I travel around the country for the Network for LGBT Health Equity, I get to hear the greatest stories from people. I heard a local newspaper profiled Robert Boo’s incredible wellness story, so I asked him to tell me more.

It all started with the Smart Ride, a 165-mile bike ride that raises money for HIV/AIDS. Robert Boo is the Chief Executive Officer of The Pride Center, Ft. Lauderdale’s LGBT community center, so he was crewing for the event.

People tried to get me to ride the first year and I was like ‘Are you crazy?’ But then I’m driving the van and I’m seeing all these people who were older and more physically challenged than I am so I thought, ‘there goes my excuse.’ Then as I watched all these people cross the finish line. It was so emotional I was crying; I wanted to do it.

“One of my board members does triathlons, he saw I was interested and next thing you know he’s taking me out to shop for all this gear.” Robert laughs, “I looked like a stuffed sausage in my lycra.” Had he even ridden a bike recently? “Oh I used to have one, but I was tired of using it to dry clothes, so I gave it away.”

So Robert started training with the other riders, and eventually he got rid of the shirt and shorts he was wearing on top of his lycra. “Come to find out I loved the riding, I loved everything about it. And it turns out I was really good. Here were all these really skinny, young, good-looking guys in their biker shorts looking all pretty. And I was all sweaty and gross-looking but I could go faster than them.”

Robert was riding every weekend, making new friends, slowly building his mileage up to 150 miles a week of riding. “I got hooked into it and then the weight just started coming off. I modified my diet a bit too and over the course of eight months I lost 75 pounds. People couldn’t believe it, it was a whole new me.” I asked him if he’d ever imagined losing that much weight. “No, I’d tried before of course, but I just came to terms with being ‘big boned.’ So now it’s wild.”

Then the day of the big ride came. This time Robert wasn’t behind a wheel, he was out there with everyone else raising money for The Pride Center and it felt great. “It’s not a race, it’s not a competition, but on the first day out of 480 riders I came in 30th. And I’m an HIV positive 53-year-old!” he adds. “It was wonderful, I felt like I could have ridden the whole 165 miles that day.” When he crossed the finish line the second day he was crying again, but this time for intensely personal reasons, “I never expected how much it would change my life.”

It’s been a year since that fateful ride; one of the things Robert didn’t expect is how much of an impact his journey would have on everyone else around him. “So many people come up to me and say I inspired them to start training and working on their own health.” Knowing that he’s become a role model for others helps Robert too, “I know I have to keep the weight off, so I’m swimming several times a week. People tell me they could never do it but I just say ‘seriously if I can do it, anyone can.’ There’s nothing special; I hate going to the gym but I like being outside so that’s why cycling worked for me.”

The Pride Center offers senior wellness classes several days a week, Robert used to go by the classes as he gave tours and they’d always beg him to come in, now he happily jokes they’re not working hard enough. “They’re almost religious about those classes, I love seeing that enthusiasm.” The Pride Center also offers a LGBT health directory of welcoming doctors and runs cancer support groups in conjunction with the local Gilda’s club chapter.

Robert finds himself the unofficial mascot of wellness at the Pride Center but is more than pleased he’s in that role. For him the ride was the beginning of a lifetime commitment and all the people he’s inspired are in turn inspiring him to new heights. As we end the interview his face breaks into a big grin, “I even just competed in my first triathlon. Bucket list: check!”

E-Cigarettes: Friend or Foe for the LGBT Communities?


E-Cigs

 As published on Huffington Post’s new LGBT Wellness blog, see original at: http://www.huffingtonpost.com/scout-phd/e-cigarettes-friend-or-foe_b_5024583.html

Working in tobacco control sometimes elicits interesting reactions from people. Some try to hide their smoking. While I certainly appreciate not being near the smoke itself, I’ve got great empathy for smokers. In fact, since most smokers have already tried to quit, they’re much more likely to be fellow fighters against tobacco than non-smokers. Sometimes they ask me how to best quit and I’m happy to tell them (hint, call 1-800-QUITNOW). These days everyone’s asking me something new: What about e-cigarettes? The shortest answer is “they could be helpful for a few, but we all worry about our youth.”

First, if you’re not familiar with e-cigs, they are battery-powered imitators of old-school cigarettes, designed to deliver nicotine, flavor and other chemicals through vapor inhaled by the user. Most of them have a swag little electronic light at the tip to make it seem more like an old-school cig. Some now have other names like e-hookah to avoid any cigarette associations. The claim is here’s a no-combustion device to get your nicotine fix, great for cessation and great to smoke in places where cigarettes are banned.

There is one study supporting the effects of e-cigs in helping people quit smoking but now another study is out contravening it. Considering how toxic cigarette smoke is, we all applaud anything that helps reduce the amount of cigarette smoke in the air. But if you’re trying to use e-cigs as a cessation device it’s a bit dicey right now because they’re unregulated, so the amount of nicotine you get in each dose varies, and sometimes does not match the advertising. It’s commonly known that it only takes about two weeks to kick the nicotine addiction of smoking, but anyone who’s quit will tell you, it’s the social habit of smoking that draws you back again and again. I’m not sure how putting a cigarette replacement in your mouth helps you kick that social habit — sounds to me like it’s just perpetuating it. Plus there is a new study showing other toxic chemicals in the vapor. To top it off, there’s no real science on the long-term effects of inhaling nicotine vapor. So while I’m willing to bet it’s better than inhaling tobacco smoke, that’s like saying I bet it’s better than inhaling truck exhaust. Nicotine is so toxic, poison control centers just issued an alert about high numbers of calls on accidental exposure. Just touching the liquid is enough to cause vomiting and ingesting as little as a teaspoon of some of the liquid nicotine concentrations can be fatal. I hope people set a higher bar for their own cessation journey.

The real problem is, as anyone who’s visited a vaporium can see, it’s not a cessation game. Vaporiums and e-cigs are all about enticing, and particularly enticing young people. Wander into your local vaporium belly up to the “bar” and you’ll be shocked to see how many vaporiums look like the lovechild of a hip coffee shop and a candy store. I’m not sure exactly which adult Marlboro user would switch to cotton candy flavored nicotine cartridges, or banana nut bread, or cherry limeade. Sounds to me more like flavors I’d find at a little league game. To make it worse, these products are easily available online and many states aren’t yet doing anything to restrict access to minors. Data show LGBT youth continue to smoke at rates much higher than their non-LGBT counterparts and the number of youth experimenting with e-cigs is rising rapidly… the very last thing we need is to have some fancy new gadgetry on the market enticing LGBT youth to start using a highly addictive drug to deal with the stress of stigma against us all.

We pass on smoking down through the LGBT generations socially. I’ve always called it an STD for us, a socially transmitted disease. So I also worry about adult e-cig use. Every time you “light up” you’re perpetuating the huge LGBT cigarette culture, all of us laughing and having fun and hanging out, with cigarettes in our mouths.

We already have cessation aids that deliver you nicotine in controlled regulated doses, you can find those on every drugstore shelf. Nicely, there’s not one gummy bear or watermelon flavored nicotine patch, spray or gum. So while e-cigs might help a few in quitting, I say the big picture on e-cigs for the LGBT communities is we need to think of our youth and “beware of the wolf in sheep’s clothing.”

_____

self-portrait-scout

 

 

 Dr. Scout, Director

 The Network for LGBT Health Equity

 

 

Follow Scout, Ph.D. on Twitter: www.twitter.com/scoutout

Honestly, Signing up for Obamacare Was Hard but Worth It

get_covered_bandage_hero

 It’s a bit embarrassing to admit how difficult it was to sign up for health insurance on the new exchanges. As a public health professional who’s trying hard to spread the word that people need to #GetCovered, I was trying to studiously ignore how every time I called there was some problem in signing up. Ultimately, it seemed to be related to my name change. Maybe it was more complicated because I only have a single name? I just hope every trans person doesn’t have to go through some of the hoops I did in proving they are U.S. citizens, because I know it delayed my enrollment by months.

One of the myths about these health insurance exchanges is they are only for the uninsured among us, or only for low-income folk. Actually the exchanges offer a chance of better health insurance for many of us. For example, I was already enrolled in health insurance, but to my dismay it didn’t cover any testosterone, which left me skipping some months then finally shelling out $400/month through clenched teeth. Plus, my health insurance didn’t include dental coverage, so I carefully unclenched those teeth again.

To be honest, I had to call the Rhode Island health insurance exchange probably eight times. First there was the complication of not living in the same state as my partner. While some private insurance plans would cover us both, the exchanges wouldn’t. Then they asked me to send in my drivers license and social security card to prove I was a citizen. So I scanned and uploaded them to the site then I waited for some notice it was ok to proceed… and crickets. It’s easy to put off enrolling like it’s easy to put off writing a will. Nothing bad is going on now, right? With three teenagers and a busy job, I had lots of other things competing for my attention. But once a month, as I shelled out that $400 for hormones, I kept remembering that maybe that insurance exchange could do this better?

So I called back and filled out more of the application with the friendly person on the line. But now they needed to know how much my kids’ health insurance premiums were. Really? I am not the parent who pays them, so why did it matter? It stopped me again, until that $400 payment came again and I was motivated to track down the info and called back. This time, they needed even more information about my name change. I was definitely trying hard not to curse the insurance exchanges at this point. Remember, the party line is #GetCovered. Repeat until you believe it. Or better yet, go back and watch the hilarious SNL skit on the early website problems. I’ve watched it so many times now I can do a fair impersonation of their Sebelius impersonator.

Ultimately, it was the coming deadline which moved me off my duff again. If people don’t get enrolled by March 31st, it’s see ya later until next year’s open enrollment period. So, I found my birth certificate, my legal name change document and uploaded them to the site. And voila — they finally admitted I was a U.S. citizen. I could choose a plan!

But wait, the runaround stop didn’t stop there. I wasn’t going to sign up for another plan that didn’t include hormones. Plus, I needed to make sure my trans-friendly doc was in their plan. That took four more confusing calls, this time to Blue Cross. But everything was included. And I was going to get sweet dental coverage for the whole family too, including 50 percent of my kids’ braces costs. I signed up like lightning.

I can’t lie; it was a total hassle for me to sign up and it could be for you too, but trust me it’s worth the hassle. I was cursing the insurance exchanges before but now I say bring on the new coverage as fast as it can come. Remember, we’ve only got until March 31st to sign up so spread the word. Visit Out2Enroll for more information and find more social media friendly images on the CenterLink Network for LGBT Health Equity blog here.

——

Dr. Scout, Director

The Network for LGBT Health Equity

As published on Huffington Post’s new LGBT Wellness blog, see original at: http://www.huffingtonpost.com/scout-phd/obamacare-enroll-health-insurance-exchange_b_4961096.html?utm_hp_ref=lgbt-wellness

 
Follow Scout, Ph.D. on Twitter: www.twitter.com/scoutout